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Nicole Chung
@nicolechung.bsky.social
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can anyone share good resources for autistic parents? especially autistic parents having their first kid?
16 replies 35 reposts 61 likes
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Chris Williams@cosmickarmic.bsky.social |
16 followers 62 following 8 posts
Treasury at CommunicationFIRST. Father of three. Husband to one. Neurodivergent. Disabled. (he/him)
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Nicole Chung
@nicolechung.bsky.social
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can anyone share good resources for autistic parents? especially autistic parents having their first kid?
16 replies 35 reposts 61 likes
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Chris Williams
@cosmickarmic.bsky.social
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I've been unemployed for months, our savings are low, and we need help to cover living expenses and vital services.
To anyone who can offer aid while I'm looking for work, thank you. It will mean so much to my family and help us keep our home.
gofund.me/9b193b6f
0 replies 0 reposts 0 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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If you can, please help TPGA contributor @cosmickarmic.bsky.social & his "normal suburban family with 3 autistic kids and 2 autistic parents" stay housed and fed, and retain vital services for their disabled kids. They "are grateful for anything you can provide."
www.gofundme.com/f/help-chris...
0 replies 9 reposts 10 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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CN: Suicidality, bullying
"Many autistic children sink into depression/anxiety, become school-refusers, start to fail in their targets, or go on to self-harm or consider taking their own lives. Some die. It’s a very serious subject." @annmemmott.bsky.social
thinkingautismguide.com/2020/06/auti...
1 replies 14 reposts 41 likes
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Steve Silberman
@stevesilberman.bsky.social
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Why RFK Jr. and Nicole Shanahan are so dangerous for the people they claim to represent. If you missed this new SciAm column of mine because you hit a paywall, here's a de-paywalled version: archive.today/x0Bir
2 replies 32 reposts 56 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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"If parents get their information about parenting autistic kids from the autistic community, they will find people who think that their kids are awesome, and deserve to be happy, and want their parents to feel the same way." At TPGA.
tinyurl.com/ProfoundAutism #neurodiversity #ProfoundAutism
0 replies 16 reposts 31 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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No one is truly independent: "I wonder if we can eliminate the stigma of dependence and empower every individual with the right to live a meaningful life with whatever level of support they need. It is possible to live a life of dignity that is both self-directed & supported." By Debra Brause Psy.D.
0 replies 15 reposts 30 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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A reminder about love, compassion, and empathy within and without our community, from Mel Baggs (R.I.P.). The full contemplation is long but rewarding:
withasmoothroundstone.tumblr.com/post/1630619...
0 replies 6 reposts 13 likes
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Link is coconut-pilled. 🥥 🌴
@knilirabaj.bsky.social
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Also love this book from my friend Haley Moss. Check it out.
0 replies 10 reposts 33 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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It’s Transgender Day of Visibility! To our trans community members: We see you, we love you, and we happily welcome you into our houses and to be with our families. (And if you are going stealth, you still get respect and love.) #TDOV2024 #neurodiversity via University of British Columbia Instagram
1 replies 16 reposts 19 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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“Yes, prison conditions are especially hard on autistic people. Those advocating on behalf of [Sam] Bankman-Fried aren’t wrong to think so. All the same, SBF’s attempt to use his neurodivergence as a means to escape the consequences of his actions are wrong.” By @ericmgarcia.bsky.social at MSNBC.
1 replies 5 reposts 25 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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On autism-inclusive design: "This type of design isn’t a one size fits all situation or a one and done. It’s messy and it’s not easy, but it is an opportunity to make spaces more welcoming and inclusive." At 99 Percent Invisible, podcast with audio + transcript:
#Neurodiversity
0 replies 4 reposts 13 likes
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Shannon Rosa
@shannonrosa.bsky.social
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Parents need to understand that feeling lonely and lost is usually due to a lack of autism-friendly social fabric and services and parent education, and that that is not the fault of one's autistic child, or of "autism." #neurodiversity
1 replies 12 reposts 22 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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"Parents of children with very limited language struggle to support their children’s communicative development. Stepping Into AAC is a program to support your individual’s communication journey." Via Julia Bascom @juststimming.bsky.social.
0 replies 3 reposts 7 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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If your child is going through Autistic Burnout, they will need your support. They will need your understanding, flexibility, increased sensory regulation time and a decrease in demands both from family and school environments. By AutisticRealms, at TPGA.
0 replies 8 reposts 16 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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"Communication barriers between autistic AND non-autistic people can make it more difficult for them to connect, share experiences, and empathize with one another." This is called the Double Empathy Problem, and is a shared issue—meaning non-autistic people need to work on their communication, too.
4 replies 22 reposts 46 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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"By the time 'behavior' happens, it’s too late to stop or redirect. So you want to be kind to the person who’s having trouble, even if it’s hard, and can be super scary for you. Be empathetic: it’s about them.” Autistic support professionals Brent White and Lindsey Anderson, at TPGA:
0 replies 15 reposts 32 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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"Autonomy in adolescence or adulthood is about being able to make decisions about one’s own life and enlisting support to make those decisions and implement them. It is not about having to do every single thing by yourself if your disability prevents you from doing so." At TPGA.
0 replies 7 reposts 15 likes
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Shannon Rosa
@shannonrosa.bsky.social
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Vaccines work, and have nothing to do with autism. All kids, including autistic kids, deserve protection from preventable disease. Please vaccinate your children. And your selves. (And your dogs, FFS.) Please counter vaccine misinformation if and when you can.
1 replies 9 reposts 35 likes
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Shannon Rosa
@shannonrosa.bsky.social
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My son, like many autistic folks, takes a few moments to process spoken words. But he understands most everything people say to him. There is no need to talk to him in a sing-song voice, or speak extra slowly. Besides, where is the harm in talking to him like you would any other young adult?
3 replies 11 reposts 45 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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"As a community, we’ve shifted our understanding of our nonspeaking students’ intelligence and educational needs, but have we stopped to consider how we may need to do the same for their mental and emotional health?" At Reach Every Voice, via @cosmickarmic.bsky.social.
0 replies 5 reposts 10 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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"Our responsibilities as parents include attuning to our kids& offering gentle guidance in the ways of the world—with an open mind but firm limits. However many autism interventions focus on making kids adapt to the neurotypical world, neglecting their unique experiences for the sake of conformity."
0 replies 8 reposts 17 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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If you've got one autistic child…
Then you might have another autistic child.
Even if they're "nothing like" your autistic child.
So please be careful & gentle with your expectations. Neurodivergence is often a family thing.
Want more frank advice about autism?
Go to www.ThinkingAutismGuide.com
1 replies 10 reposts 31 likes
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Chris Williams
@cosmickarmic.bsky.social
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This little light of mine.
0 replies 0 reposts 0 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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“Addressing the loneliness epidemic in the [autistic and] disabled community necessitates a nuanced understanding of independence because in actuality, all humans live in a cycle of dependency.” By Autistic academic Hari Srinavasan.
0 replies 8 reposts 20 likes
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Eric Michael Garcia
@ericmgarcia.bsky.social
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Good News! My book We're Not Broken: Changing the Autism Conversation is now available to download on Spotify! Purchase here!
t.co/wgZ3ji1Lll
1 replies 7 reposts 26 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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For autistic people, "It can be very hard to move on and shift attention tunnels when you are consumed by looping thoughts, whether they are positive or negative. Switching tasks and moving from one attention tunnel to another can be challenging, use a lot of energy and be completely exhausting."
2 replies 10 reposts 30 likes
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Taylor Lorenz
@taylorlorenz.bsky.social
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This Verge package on Twitter is so fantastic and beautifully designed, it's a must read www.theverge.com/c/23972308/t...
3 replies 31 reposts 129 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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What does an autistic child's love looks like? One of many reasons to heed autistic wisdom is that "So many parents grieve, thinking there is no love," when the problem is they don't know how to recognize autistic love. By @annmemmott.bsky.social, at TPGA.
1 replies 26 reposts 63 likes
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The Partnership for Inclusive Disaster Strategies
@disasterstrat.bsky.social
[ View ] |
"Disabled People Need a New Climate Safety Net"
tinyurl.com/28y6t2jh by hifortesa.bsky.social
To-do
Create a list of meds
Assemble a go-bag
Keep equipment fully charged. @sfdirewolf.bsky.social tries to keep her ventilator, wheelchair & feeding machine charged w/ backup batteries
Lean on community
0 replies 12 reposts 17 likes
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Shannon Rosa
@shannonrosa.bsky.social
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Dear journalists: Any time you write an article about "treating" autism, you are failing the autistic children and adults who need supports, understanding, acceptance, and services that they are not getting because all funding is going into those f***ing "treatments." Do better.
1 replies 41 reposts 122 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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How My Son’s Autism Diagnosis Led to Uncovering My Own Undiagnosed Autism: A late-diagnosed mom discusses commonalities she shares with her child: Social issues, communication hiccups, eye contact aversion, and passions/special interests. By Melissa Guida-Richards:
0 replies 8 reposts 21 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
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Autistic speech/motor development can be spiky AF, for good reasons: "Autistic people with speech delays or impairments are often underestimated. Applying lessons from evidence on their sensory and motor strengths can support recognition of their intelligence and communication." By Dr. Steven Kapp:
0 replies 8 reposts 16 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
[ View ] |
Talking about Same Foods (the importance of food being consistent and predictable as a way to better ensure ease and avoid stress for many autistics): What do you wish people knew about Same Foods and why they matter? Do you have any horror stories about people refusing to respect Same Foods?
0 replies 8 reposts 25 likes
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Ed Yong
@edyong209.bsky.social
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I just finished a galley of THE LIGHT EATERS, by Zoe Schlanger, and I cannot say enough good things about it. If you liked AN IMMENSE WORLD and thought, "But what about plants??", then Zoe has written the book for you. I see it as a sister publication to mine. Out next May. Pre-order now!
5 replies 61 reposts 278 likes
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Ed Yong
@edyong209.bsky.social
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A reminder that this new long-COVID-focused publication now exists, comes from excellent people, and is living up to its promise.
6 replies 166 reposts 347 likes
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Chris Williams
@cosmickarmic.bsky.social
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I reflect on and return to Stacey Milbern’s words and wisdom on Disabled Ancestors often. A sacred text:
0 replies 0 reposts 2 likes
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charlotte
@tambourine.bsky.social
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Any disability literature (whatever that means to you) to recommend?
9 replies 4 reposts 11 likes
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Robert Chapman
@drrobertchapman.bsky.social
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EMPIRE OF NORMALITY: Neurodiversity and Capitalism is out today! It works towards a historical neurodivergent consciousness - to show how neurodivergent liberation is bound up with collective liberation & why our struggle must be against capital & empire. tiny.cc/nkwevz
0 replies 17 reposts 55 likes
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Ed Yong
@edyong209.bsky.social
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It’s Trans Day of Remembrance. 🏳️⚧️
Here are some orgs/people I donate to:
- Trans Lifeline translifeline.org
- Gender Reveal (podcast+microgrants) www.genderpodcast.com/donate
- Assigned Media/Evan Urquhart www.assignedmedia.org/support
- Katelyn Burns www.patreon.com/katelynburns
0 replies 167 reposts 317 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
[ View ] |
Light sensitivity is common among autistic people, and yet another factor to consider when autistic kids or adults with communication disabilities are "acting out for no reason." (NO autistic person EVER "acts out for no reason." There is always a reason.) From M. Kelter, RIP. At TPGA.
1 replies 15 reposts 30 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
[ View ] |
"I think that we need to start by listening to those in minority communities who are saying that our trainings, the direction our profession as a whole is taking, doesn’t feel safe, or accessible."
0 replies 9 reposts 16 likes
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The Sick Times
@thesicktimes.bsky.social
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"If our medical and public health institutions fail to understand how [infection-associated] diseases work and come up with solutions now, they are doomed to repeat their mistakes of the last three years when future pathogens hit," writes @betsyladyzhets.bsky.social in her editorial letter.
0 replies 19 reposts 38 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
[ View ] |
Debunking the stereotype that autistic people don't "want" to make social connections, when one real issue is that social environments are often sensory hell, which makes it hard for autistic people to socialize in them. Thoughtful sensory design for such spaces could help, a LOT. New research.
1 replies 44 reposts 106 likes
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Ed Yong
@edyong209.bsky.social
[ View ] |
In my latest newsletter, I'm excited to announce my 3rd book!
THE INFINITE EXTENT. A book about life at different scales--of size, time, geography, longevity, connectivity, individuality, & more.
I see it as the conclusion of a trilogy of books.
More details: buttondown.email/edyong209/ar...
23 replies 79 reposts 439 likes
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Julie Rehmeyer
@julierehmeyer.bsky.social
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Happy to see @mfairma.bsky.social here! He wrote an extraordinary essay about how John Prine has helped him accept a life of illness: m-lazell-fairman.medium.com/how-singer-s...
6 replies 20 reposts 45 likes
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Taylor Lorenz
@taylorlorenz.bsky.social
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Is there any sort of disability justice community on here? The reason I haven’t left twitter is all the incredible ppl in the long covid advocacy world, and I really wish there were more ppl on here educating others about long covid and disability issues. People seem very misinformed :( Tag below!
40 replies 48 reposts 223 likes
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Thinking Person's Guide to Autism
@thinkingautism.bsky.social
[ View ] |
The Autistic Self Advocacy Network's fourth annual virtual gala will be on Thursday, November 16th. It will be a fabulous online extravaganza and celebration of self-advocacy, plus a raffle! Details and tickets here:
autisticadvocacy.org/2023/09/gala...
0 replies 2 reposts 5 likes