Thinking Person's Guide to Autism. She/Her. Neutral Good. Earnest AF. Likes cephalopods. Targ herder. “A Vulcan should have a more resilient bladder.” So mamy typos.
"We need to recognize that when our autistic family members thrive, our entire families thrive. And that can’t happen if our caregivers don’t have the resources they need." From My Comment For the July 2024 IACC Meeting on Caregiving.
Project 2025 is useful mostly in that a key problem Democratic campaigns have historically had is that when you tell people what Republicans actually want to do, they don’t believe you. The evil public list makes it a bit more concrete.
If you can, please help TPGA contributor @cosmickarmic.bsky.social & his "normal suburban family with 3 autistic kids and 2 autistic parents" stay housed and fed, and retain vital services for their disabled kids. They "are grateful for anything you can provide."
As I have become increasingly devoted to "learn from my mistakes, so you don't repeat my mistakes," here are five bonks I made during the early years of parenting my autistic son, and how you can avoid repeating my fails.
As parents, we need to be really careful to distinguish between “this thing is making my kid be the person I want them to be but they aren’t,” and “this thing is making my kid happy and making it easier to do things that are hard for them.” Let your autistic kids have fun, people!
As I have become increasingly devoted to "learn from my mistakes, so you don't repeat my mistakes," here are five bonks I made during the early years of parenting my autistic son, and how you can avoid repeating my fails.
ABA Advocates tell parents and educators that ABA therapy is evidence-based. Except that "evidence" is lacking, and also riddled with conflicts of interest—if you really look at the record and research like Anne Borden King does.
Our progressive thought-shapers need to stop treating autism and disability as rare and tragic exceptions, instead of commonplace, both now and throughout history. Parents-to-be need to be aware that autism is a possibility they can prepare for, not a tragedy. #neurodiversity
"Violent retaliation against people with IDD for non-compliance was commonplace in ABA and related interventions for years and, in some practices, remains to this day."
But even when we embrace inclusion as a disability rights baseline, my autistic son still doesn’t get to do all the things—but that’s because of accessibility barriers, not because inclusion itself is a flawed concept.
Our progressive thought-shapers need to stop treating autism and disability as rare and tragic exceptions, instead of commonplace, both now and throughout history. Parents-to-be need to be aware that autism is a possibility they can prepare for, not a tragedy. #neurodiversity
"Does constantly complaining about what my autistic son can't do, and what a burden he is, and how I wish to eradicate disabilities like his in future generations—instead of focusing on his happiness and QoL—make me a eugenicist?" (tl;dr: Yes, Ms. Lutz—it sure does.)
"Violent retaliation against people with IDD for non-compliance was commonplace in ABA and related interventions for years and, in some practices, remains to this day."
"Does constantly complaining about what my autistic son can't do, and what a burden he is, and how I wish to eradicate disabilities like his in future generations—instead of focusing on his happiness and QoL—make me a eugenicist?" (tl;dr: Yes, Ms. Lutz—it sure does.)
"We need to help caregivers understand that disability is both common and normal. We really need autism caregiver versions of Stacey Park Milburn’s 'Disability Doulas' to help ease people into the autism caregiving community."
"We need to recognize that when our autistic family members thrive, our entire families thrive. And that can’t happen if our caregivers don’t have the resources they need." From My Comment For the July 2024 IACC Meeting on Caregiving.
Cynthia Kim is an autistic parent of a non-autistic kid. She talks about this sometimes (her archive is called Musings of an Aspie, because pre-DSM 5). musingsofanaspie.com
Parents of autistic kids: You need to "Find communities full of people who value autistic people, that include them as leaders and equals, and that rally behind them. That way, when your kids grow up, these communities will include them, too—however they can participate, and even if they don’t."
Really disgusted by weaponized fear mongering about the "trans threat" when meanwhile trans and queer people are constantly running GoFundMe campaigns to cover the medical costs of friends getting beat up …because of weaponized fear mongering about "the trans threat."
Really disgusted by weaponized fear mongering about the "trans threat" when meanwhile trans and queer people are constantly running GoFundMe campaigns to cover the medical costs of friends getting beat up …because of weaponized fear mongering about "the trans threat."
Ugh I have to get a new car (10 year old minivan has 230K miles and is rickety; also we no longer ferry flocks of schoolkids all over the region and are looking to downsize).
Any advice on dealing with car salespeople as a haggling-averse introvert besides "send someone else"?
Here is one of the hugest red flags in parenting and autism:
"Being a parent means using 'tough love.'"
OMFG NO NO NO. Your autistic child needs you to understand them, support them, and protect them from a world that will rarely do ANY of those things.
Parenting means putting your child FIRST.
Here is one of the hugest red flags in parenting and autism:
"Being a parent means using 'tough love.'"
OMFG NO NO NO. Your autistic child needs you to understand them, support them, and protect them from a world that will rarely do ANY of those things.
Parenting means putting your child FIRST.
"Most studies did not say how they decided that behaviors they tried to stop were a problem for the autistic people, & most studies did not try to figure out why the autistic people in the study did the behaviors researchers were trying to stop them from doing."
Recently an older woman told me and my autistic son how rude people used to be to her and her son. I told her the problem was rude jerks, not her son living his life. She said she knows this now but it sucked at the time. So, in case anyone else needs to hear it, the problem is usually OTHER PEOPLE.
"Even their autism consultant was non-autistic. Other non-autistic people were able to watch their caricatured results for entertainment and alleged education, pat themselves on the back for their open-mindedness, & occasionally lecture autistic people about their new and improved autism awareness."
"Even their autism consultant was non-autistic. Other non-autistic people were able to watch their caricatured results for entertainment and alleged education, pat themselves on the back for their open-mindedness, & occasionally lecture autistic people about their new and improved autism awareness."
“I hope disabled readers feel seen and invigorated at the range of sexual expression from these stories & how they aren't framed to prove ‘we're just like everyone else.’” @sfdirewolf.bsky.social on her own pleasure, and editing her new anthology Disabilty Intimacy:
The coelacanth has been dubbed a living fossil, although, experts say this nickname is not accurate and the coelacanth has, in fact, evolved, albeit extremely slowly.
Autistic safety and comfort are often neglected when people don't get autism, or insist on non-autistic approaches. In our latest at TPGA, we talk with seven autistic people about strategies for making homes feel safe for the autistic people who live in them.
It's Mother's Day in the United States. However this day hits you—with joy, with pain, with a complicated knot of feelings—know that we see you, and that you are not alone.
“Finding true support for autistic kids does not involve parachuting behaviourists into the community (or removing children from the community to receive behaviourist therapies)—they come from within the community.” #neurodiversity#autism
Cochineal is in your food as "carmine," and turns textiles a historically-coveted brilliant red. It is made out of cactus-eating bugs from Oaxaca, Mexico—where the latest KQED Science #DeepLook from my sweetie & team was filmed (alas, he was not part of the field crew).
Cochineal is in your food as "carmine," and turns textiles a historically-coveted brilliant red. It is made out of cactus-eating bugs from Oaxaca, Mexico—where the latest KQED Science #DeepLook from my sweetie & team was filmed (alas, he was not part of the field crew).
I’m pleased that April has been reclaimed as #AutismAcceptanceMonth, after years of superficial “awareness” campaigns. And yet, we are still only inching towards real world autism understanding. Or so I observed recently at a cast and crew screening of the autism-centric movie Ezra.