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Rachel Kay W (Tala)
@talaattanagra.bsky.social
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#DisabilityPride month #MEcfs #disability š©¼ā暦 š·š©š»āš¦¼
0 replies 6 reposts 10 likes
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yeslek@yeslek.bsky.social |
169 followers 475 following 279 posts
ME/CFS since 2012. Previously: Urban Planner, hiker, river rat. Currently: weekly infusions for immunodeficiency, AAI, tethered cord surgery in 2022, migraines. Lurking as socializing, engaging when able. Disabled, housebound, and disillusioned in the USA.
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Rachel Kay W (Tala)
@talaattanagra.bsky.social
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#DisabilityPride month #MEcfs #disability š©¼ā暦 š·š©š»āš¦¼
0 replies 6 reposts 10 likes
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yeslek
@yeslek.bsky.social
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I second this. I bought a refurbished pair before a hospital stay 2 yrs ago and now wonder how I ever lived without them.
www.bose.com/c/refurbished
0 replies 0 reposts 1 likes
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gamera obscura
@ohrobin.bsky.social
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I cradle my grief, a swaddled child Fast against the hostile world I carry her from room to room in an empty house I sing wordless comfort She cries out to me in my own voice.
1 replies 5 reposts 20 likes
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yeslek
@yeslek.bsky.social
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www.okdoomer.io/everything-t...
0 replies 1 reposts 2 likes
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Beatrice Adler-Bolton
@reallandsend.bsky.social
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"Masks did not become a symbol of solidarity overnight...There is still much work to be done. But if you ever stopped masking, there has rarely been a better time to start again. Mask up and show your solidarity. Eric Adams will hate it."
3 replies 128 reposts 244 likes
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yeslek
@yeslek.bsky.social
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This is āhow can we grow grammerly tech into new markets?ā business babble nonsense. Fuck this shit, no one wants it, itās all for profit, developed by people who donāt understand the world unless itās adding zeros to their bank account or followers on their social media. Soulless garbage.
0 replies 0 reposts 3 likes
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yeslek
@yeslek.bsky.social
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Sobering thread.
0 replies 0 reposts 0 likes
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Erin Fogg
@criminalerin.bsky.social
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Hey how'd all these microplastics get in everyone's dicks and balls and cooters and developing human emberos and whatnots
5 replies 10 reposts 52 likes
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yeslek
@yeslek.bsky.social
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Just gonna leave this here in case anyone happens upon this post. Data obfuscation is already happening and it affects real people right now who need you to not look away because itāll be you someday. We all become feeble at some point. Our friends and our leaders need to acknowledge this.
0 replies 0 reposts 0 likes
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yeslek
@yeslek.bsky.social
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That we do. ā„ļø
0 replies 0 reposts 1 likes
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yeslek
@yeslek.bsky.social
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Well, I am glad to be in this boat with you. Good company.
0 replies 0 reposts 1 likes
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yeslek
@yeslek.bsky.social
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Didnāt mean to drop so much! Sometimes you step back and are just like, fuck, did that really all happen? And now, is this really all happening? No one cares? Not friends, not family, not the government, not strangers who claim they do? Itās wild!
1 replies 0 reposts 1 likes
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yeslek
@yeslek.bsky.social
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So, so tenuous. I was also at a very vulnerable time as I had just lost my job the yr before after going thru a 1.5 yr āreasonable accommodationā process at work while simultaneously finally being diagnosed with ME/CFS after being sick for 7 yrs. World crashing down, and everyone was like, nope.
2 replies 0 reposts 1 likes
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Sara Luterman
@slooterman.bsky.social
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90 disability orgs wrote a letter to @cnn.com asking them to make the Presidential debate more accessible and for them to cover at least some topics of particular interest to disability communities. They didnāt get a response. But I did.
1 replies 27 reposts 41 likes
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yeslek
@yeslek.bsky.social
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Iām still processing it. I deleted the majority of the contacts on my phone. Theyāre the perfect candidates for Appleās rollout of AI auto sending bday greetings to friends. I assume they have no problem with that level of friendship/family bonding because thatās how theyāre already treating me.
1 replies 0 reposts 1 likes
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yeslek
@yeslek.bsky.social
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So, to me, the disinformation or obfuscation of data is already happening and is ongoing.
0 replies 0 reposts 1 likes
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yeslek
@yeslek.bsky.social
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Iāve spent untold hours telling my āliberalā friends that āwe (the immunocompromised, the most vulnerable, the most at risk due to occupation, etc) need allies! We need your help!ā And now now one talks to me because our Democratic Government Officials told them everything was over.
2 replies 0 reposts 1 likes
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yeslek
@yeslek.bsky.social
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And then Bidenās CDC did this and called masks a Scarlet Letter, hooray for truth and data!
2 replies 0 reposts 2 likes
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Zoe Tunnell
@zoewithasword.bsky.social
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It is very exhausting to see people doing "ha ha look how dumb Chat GPT is it can't get basic questions right" right as we are getting constant stories about how much energy even basic queries for AI uses up. Just don't use it! The bit isn't that funny!
8 replies 393 reposts 851 likes
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han olliver
@hanolliver.bsky.social
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I'm heartbroken most days but there's so much to do; I want to hope people will move in solidarity. I hope people start masking again. Even if you feel weird, even if you begin imperfectly, even if you don't "feel" you need to. If you stopped masking you can always start again. Please please do.
3 replies 34 reposts 91 likes
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yeslek
@yeslek.bsky.social
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We eliminated a strain of flu in 2020 when people were tryingā¦youād think this would have made an impression on the medical community, and yetā¦
1 replies 0 reposts 5 likes
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Cynthia Johnson
@minetodo.bsky.social
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ME/CFS stands for myalgic encephalomyelitis/chronic fatigue syndrome. To learn more, please check out: MEAction Network (meaction.net), Open Medicine Foundation (omf.ngo), Bateman Horne Center (batemanhornecenter.org) and Solve M.E (solvecfs.org).
0 replies 3 reposts 11 likes
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Kate Violette
@kateviolette.com
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Reboosting for the Sunday crowd. You really should take the time to read this story. (It's a 40-50 min read, so, get comfortable. But, it's worth it.)
0 replies 2 reposts 7 likes
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yeslek
@yeslek.bsky.social
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š
0 replies 0 reposts 1 likes
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yeslek
@yeslek.bsky.social
[ View ] |
0 replies 0 reposts 2 likes
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lanyardigan
@lanyardigan.bsky.social
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No, thereās no time to check the uterus, cervix, etc.!!! We simply donāt care
0 replies 7 reposts 68 likes
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yeslek
@yeslek.bsky.social
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Wish I could upload this into every humanās brain every hour on the hour until people wake up and start talking to each other about how to be better humans to each other and electing actual humans who will create laws to protect people, not corporations.
0 replies 2 reposts 3 likes
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yeslek
@yeslek.bsky.social
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This is an old fashioned Egg Cream except coffee instead of chocolate?
0 replies 0 reposts 0 likes
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Helioscope
@helioscopepdx.bsky.social
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Zoom in on this pencil rough of Dorne's and explore that great draftsmanship!
4 replies 27 reposts 132 likes
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Alyssa Harad
@alyssaharad.bsky.social
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I never feel more like I am wearing a tin hat than when I try to explain thirty percent or more of Covid cases are asymptomatic.
3 replies 6 reposts 45 likes
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Dr. Lucky Tran
@luckytran.bsky.social
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Banning masks and halting congestion pricing puts the health of all New Yorkers at risk. Kathy Hochul is an anti-public health, pro-fossil fuel Governor.
0 replies 31 reposts 138 likes
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Dr. Damien P. Williams: Magus, Werewolf, Cyborg, Bi
@wolvendamien.bsky.social
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Yeah, if i get a time machine it's (working backward): prevent the creation facebook, keep alito off the bench, keep thomas off the bench, fix weimar germany, make sure Henry Morton Stanley never leaves the Congo, turn back cortes, turn back columbus, & make sure the Portuguese never Reach the Congo
14 replies 5 reposts 64 likes
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Nate
@natedub.bsky.social
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Lots of Covid minimization flying around the BlueSky these days. Whether apathy or motivated reasoning, it's certainly not in line with the continued accumulation of evidence indicating how badly we need to pursue actual solutions and continue our layered mitigations until we have them.
1 replies 29 reposts 64 likes
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AF the Virologist
@afthescientist.bsky.social
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I just did this and it took me less than 5 minutes. If you need talking points, the Peopleās CDC has good ones and you can find them on instagram. I will try to link the post in the replies.
3 replies 49 reposts 49 likes
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yeslek
@yeslek.bsky.social
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Dealing with it today, can confirm!
0 replies 0 reposts 2 likes
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yeslek
@yeslek.bsky.social
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Most welcome!
0 replies 0 reposts 2 likes
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yeslek
@yeslek.bsky.social
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Nice to meet you! I enjoy your posts. I donāt engage too much, but this is really my only socializing options, soooooo. Solidarity my friend!
1 replies 0 reposts 2 likes
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Kate Violette
@kateviolette.com
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I'm begging people to read this. Come on, folks.
2 replies 17 reposts 48 likes
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yeslek
@yeslek.bsky.social
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I also use Ecosia. I have light sensitivity issues, and I like that they have a āforce dark modeā setting.
www.ecosia.org/browser?_sp=...
1 replies 1 reposts 4 likes
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yeslek
@yeslek.bsky.social
[ View ] |
5 replies 1 reposts 4 likes
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yeslek
@yeslek.bsky.social
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gardening is an extreme sport
0 replies 0 reposts 1 likes
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yeslek
@yeslek.bsky.social
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Ugh, I think I had those once, from a wildflower seed packet that claimed to be a native mix. They were so annoying, I think they were Chinese Forget Me Nots
1 replies 0 reposts 1 likes
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Dr. Lucky Tran
@luckytran.bsky.social
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The good news is that many of the things we need for pandemic resiliencyāclean air, free masks, more accessible public transport, decrease commutingāare the same things which will make our cities more resilient to climate change.
0 replies 12 reposts 87 likes
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yeslek
@yeslek.bsky.social
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Yet another aspect of ME/CFS thatās been ignored by research but has known to patients for years and is ~Ā”surprise!~ showing up in Long Covid. This is the exact nexus of study that the NIH should make a priority. Many of us are hypermobile with Craniocervical and/or Atlantoaxial Instability.
0 replies 2 reposts 7 likes
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Julia Doubleday
@juliadoubleday.bsky.social
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2023 COVID deaths were higher than if weād reintroduced polio, whooping cough, diphtheria, measles & mumps combined. 75k vs 43k, adjusted for population.
This is bc of CASE load. Other viruses are deadlier, but none reinfect like Covid. Read:
t.co/NnFCppkF5C
1 replies 148 reposts 247 likes
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yeslek
@yeslek.bsky.social
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Yessssss! Also the 1st comment on the video is perfection
0 replies 0 reposts 0 likes
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yeslek
@yeslek.bsky.social
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This gem recorded during those sessions is not to be missed.
youtu.be/X5uyltRASHY?...
1 replies 0 reposts 2 likes
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yeslek
@yeslek.bsky.social
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Case in point: bsky.app/profile/yesl...
0 replies 0 reposts 0 likes
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CHOAM Nomsky š
@thielman.bsky.social
[ View ] |
here's the thing: YES
7 replies 11 reposts 47 likes