Sage

@sagetoko.bsky.social

147 followers 217 following 320 posts

Applied Physics PhD working in industry. Chronically ill maker of things. Fiber arts, cooking, dogs. she/her. Exceedingly fond of heffalumps. 🐘❤️

Sage @sagetoko.bsky.social
[ View ] Jul 10, 2024 at 00:14 UTC

This is such a mood, Kate. Solidarity and/or rage hugs on offer. 🐘❤️

0 replies 0 reposts 2 likes

Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 23:37 UTC

FYI I take 0.3mg/day Florinef, 0.2 in the early am and 0.1 after dinner. I’ve tried cutting back with … unfortunate results. Though I’m curious if the guanfacine would change that.

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Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 19:32 UTC

🐘❤️

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Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 19:16 UTC

I hope some combo of guanfacine and florinef helps you! It sounds like we have a lot of symptoms in common, always happy to discuss where things in my experience line up with yours. 🐘

1 replies 0 reposts 1 likes

Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 19:14 UTC

I definitely understand only one med change at a time! The waiting is HARD but it’s worth it to run health experiments as effectively as possible for n=1 subject. I don’t have vasculitis afaik, though tbh with LC who knows? I’m EDS, POTS, LC-based ME, milder MCAS, chronic migraine.

1 replies 0 reposts 1 likes

Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 18:16 UTC

that the midodrine was actually the cause. But going on florinef was actually what ended a ten-month constant migraine while drinking and immediately peeing back out 6 plus liters a day. Now I’m stable around 3.5-4.5L depending on the temperature and my hormonal state.

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Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 18:15 UTC

I tried florinef first and have done well on it (uh, aside from ending up in the ER hypokalemic: you have to keep a CLOSE eye on your potassium levels and supplement like mad) and my midodrine experiment coincided with some really bad MCAS flares so we discontinued even though I’m not convinced …

1 replies 0 reposts 1 likes

Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 16:40 UTC

I didn’t actively notice better temp regulation when I started it, and the heat is definitely still hard on me, but I’ll think more about it. Happy to answer any questions about my experience!

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Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 16:39 UTC

Guanfacine has been really, REALLY good for my brain fog and fatigue from LC. I started at 0.5mg and went up by 0.5s to 2mg SLOWLY, I think over three months? Each increase would cause a BP drop for a few days but then I’d manage to adjust. Note I also take florinef to help me keep sodium/fluids.

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Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 01:28 UTC

Good for vitamin A deficiency, though!

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Sage @sagetoko.bsky.social
[ View ] Jul 09, 2024 at 00:02 UTC

I’d like to do something with more curviness like your towels now that I have eight harnesses available on all my looms!

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Sage @sagetoko.bsky.social
[ View ] Jul 08, 2024 at 23:58 UTC

I … should get back to my weaving, though I get the reasons why that’s been hard lately.

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Sage @sagetoko.bsky.social
[ View ] Jul 08, 2024 at 23:55 UTC

Oooh, beautiful!!

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Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 21:44 UTC

I’ve used these in an MRI! They are definitely free of metal.

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Paul "Princejvstin" Weimer📸📷🚀 @princejvstin.com
[ View ] Jul 06, 2024 at 18:08 UTC

"the media is right now campaigning hard for a Democratic party loss. The other term for that is a Republican victory. Few things have terrified and horrified me the way this does."

@rebeccasolnit.bsky.social at the Guardian

www.theguardian.com/commentisfre...

0 replies 18 reposts 27 likes

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e.e. yikes @eeyikes.bsky.social
[ View ] Jul 06, 2024 at 16:58 UTC

Screaming "THANK YOU" at every other line of this piece, and especially the last 2 paragraphs.

www.theguardian.com/commentisfre...

1 replies 11 reposts 19 likes

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rahaeli @rahaeli.bsky.social
[ View ] Jul 06, 2024 at 15:19 UTC

Via @nevadawolf.bsky.social: more evidence that histamine antagonists inhibit SARS-CoV-2 infection and replication and some work on determining the potential mechanism journals.asm.org/doi/10.1128/...

22 replies 103 reposts 199 likes

Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 16:33 UTC

@liapas.bsky.social

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Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 02:40 UTC

Yes and yes, though I try not to overly identify him since I don’t know what he’d think of that. (I intend to ask next time I see him, since for whatever reason the photo seems to be coming up more frequently.)

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Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 01:48 UTC

It makes me happy how many people I can make happy with this information 😸

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Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 01:46 UTC

Congrats on correctly identifying it as a trombone! Lots of people say it’s a trumpet when talking about this image, but he’s a trombonist, just holding it out of the way.

1 replies 0 reposts 2 likes

Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 01:45 UTC

I really need to tell him, the next time I see him, how many people online are curious about how this book cover came to be. Glad I could answer it for you!

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Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 01:34 UTC

It’s a very worthwhile mushroom!

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Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 01:21 UTC

No, he was on his way to an orchestra dress rehearsal when he found the mushroom and the photo was taken. It was later shared with the author, who I think he knew from a local mushroom-hunter group?

3 replies 1 reposts 16 likes

Sage @sagetoko.bsky.social
[ View ] Jul 06, 2024 at 01:12 UTC

I love seeing this image online, it’s of a family friend (who is not, in fact, the author of that book).

1 replies 1 reposts 10 likes

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Erin Biba @erinbiba.bsky.social
[ View ] Jul 05, 2024 at 17:14 UTC

4 replies 316 reposts 635 likes

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Katie Mack @astrokatie.com
[ View ] Jul 03, 2024 at 03:11 UTC

Keeping Trump out of the White House isn’t the only thing that needs doing and it isn’t enough to solve all problems facing the country & world but if it isn’t done then all those problems get exponentially worse in ways I don’t even know how to express and it scares me when people pretend otherwise

77 replies 1183 reposts 4582 likes

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Monica C. Camacho @mc2x.bsky.social
[ View ] Jul 02, 2024 at 14:39 UTC

This is why the election still matters: who staffs the executive branch, what decisions they make, and how they enforce them have a tangible impact on daily life see also: who nominates federal iudges

1 replies 14 reposts 30 likes

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executive editor, barbell quarterly @swolecialism.bsky.social
[ View ] Jul 01, 2024 at 16:20 UTC

a thing to remember, in all of this horror, is that these are not the actions of a political party that is confident it represents the will of the people, and who is currently out of power and enslaved to a deeply flawed avatar. the struggle is not over and they have not won

54 replies 953 reposts 3188 likes

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mx elle is eepy @ellearmageddon.bsky.social
[ View ] Jul 01, 2024 at 19:08 UTC

i want to add: if you’ve stopped masking for whatever reason, you can start again. it makes spaces more accessible, it helps preserve your health and the health of the people around you. it’s a tiny action you can take to make the world safer.

13 replies 321 reposts 646 likes

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Erin Biba @erinbiba.bsky.social
[ View ] Jul 01, 2024 at 19:44 UTC

"Now is the time for us to join together as a community and stand up for one another and fight the good fight because all we have is each other!" So you're gonna start masking again right? Right?

8 replies 72 reposts 299 likes

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Roxi Horror 💀🌸 @roxiqt.com
[ View ] Jul 01, 2024 at 21:49 UTC

For Disability Pride Month, one thing I'd love abled bodied people to figure out is how to speak to someone with chronic health issues without implying that if they themselves had the disabled person's health conditions, they would end it all. I promise you life goes on- even with health issues.

16 replies 292 reposts 998 likes

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Aaron Radney @aaronradney.bsky.social
[ View ] Jun 30, 2024 at 22:28 UTC

One of the things I think about a lot is how one of the first lessons my mom taught me about voting was that it's not enough to consider what's best for your interests but those of the people around you. Your actions/vote will have an impact on them too. It's a principle I wish more ppl learned.

1 replies 13 reposts 41 likes

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Nora Reed (they/them ze/hir) @nora.zone
[ View ] Feb 08, 2024 at 19:04 UTC

when i say "abortion is healthcare" i want to emphasize that i don't mean that it should suck ass like every other form of healthcare

17 replies 461 reposts 2933 likes

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Dr. Damien P. Williams (Temporarily Logged Off) @wolvendamien.bsky.social
[ View ] Jun 22, 2024 at 15:09 UTC

If you think everyone claiming their PhD is only claiming something about their intelligence rather than, say, celebrating hard accomplishments & staking out expertise in a world that likes to tell people specifically like them they can't be experts, in ways large & small? Then you missed some shit.

9 replies 82 reposts 417 likes

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Sean @publichealth.bsky.social
[ View ] Jun 28, 2024 at 17:24 UTC

this is a good piece, and erica white sums up chevron's public health impact on *emergency powers* nicely: “without chevron, agencies may be wary of acting, even during an emergency, because their actions could be challenged, & they would no longer be able to cite [it] in defense..."

1 replies 28 reposts 50 likes

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Bree (half of Kit Rocha) @mostlybree.kitrocha.com
[ View ] Jun 28, 2024 at 03:33 UTC

At the end of the day, I don't need to be excited about the top of the ticket to be excited about this election. The presidential election is a root canal. Unfun but probably important not to avoid. DOWN BALLOT IS WHERE IT'S AT! Let's codify abortion! Let's kick these bitches off school boards!

2 replies 108 reposts 323 likes

Sage @sagetoko.bsky.social
[ View ] Jun 27, 2024 at 17:40 UTC

Exciting! I hope it’s a great option for you. I spin more on and off than you do, but lately on has been with my EEW Nano. I maaaaaaybe will get a daedalus someday. If I’m very lucky.

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Sage @sagetoko.bsky.social
[ View ] Jun 27, 2024 at 17:35 UTC

What kind of wheel are you getting?

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Katie Mack @astrokatie.com
[ View ] Jun 27, 2024 at 15:21 UTC

Just FYI we’re entering a summer Covid wave right now (especially western regions in the US); you can see it in the CDC wastewater plot here (and anecdotally a bunch of my friends are suddenly testing positive). www.cdc.gov/nwss/rv/COVI...

38 replies 586 reposts 1009 likes

Sage @sagetoko.bsky.social
[ View ] Jun 26, 2024 at 23:57 UTC

Hmmmm, not off the top of my head, though I do know which of my friends who does math art I would ask to ask their community…

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Lauren @laurenkayes.bsky.social
[ View ] Jun 25, 2024 at 17:10 UTC

If you haven’t been masking in public since 2021 please mask the fuck up in solidarity. We’ve been begging for years and everything we’ve said would happen has happened and is happening bc you’d rather disappear disabled people than listen to us when we see the fascist warning signs

1 replies 158 reposts 410 likes

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K.B. Spangler @kbspangler.com
[ View ] Jun 25, 2024 at 15:11 UTC

This is a list made by Boreal-Sea at tumblr. It's pretty straightforward. These will (probably) come up in the debate. I'm interested in what they have to say.

www.tumblr.com/boreal-sea/7...

3 replies 14 reposts 71 likes

Sage @sagetoko.bsky.social
[ View ] Jun 25, 2024 at 05:07 UTC

Apparently the keyword you want for the stool might be “saddle stool”?

1 replies 0 reposts 1 likes

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Dr. Lucky Tran @luckytran.bsky.social
[ View ] Jun 25, 2024 at 02:05 UTC

Even before mask bans become law, simply the act of politicians speaking about mask wearers as criminals is stigmatizing a critical public health tool, and encouraging harassment of marginalized groups. That is incredibly reckless and making our cities more unsafe.

7 replies 294 reposts 822 likes

Sage @sagetoko.bsky.social
[ View ] Jun 24, 2024 at 18:28 UTC

Solidarity. Neurodivergence plus post-viral illness is a hell of a combo, which only makes it suck more that neurodivergence seems to increase risk of developing post-viral illness…

1 replies 0 reposts 1 likes

Sage @sagetoko.bsky.social
[ View ] Jun 24, 2024 at 17:49 UTC

Of course there’s also the mindset shift of sitting at the kitchen table to prep ingredients, but that doesn’t help with needing to stand over the stove. For that I would sit on the stoolmore sideways relative to the counter, which, suboptimal but less so than standing when I couldn’t.

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Sage @sagetoko.bsky.social
[ View ] Jun 24, 2024 at 17:48 UTC

It looks like this. It’s height adjustable like an office chair and the angled-down leg areas let me knees kind splay out. It works well for me to use it to sit at a corner of a counter, since the normal issue with stools and cooking is nowhere for your knees to go so you’re too far away to work.

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Sage @sagetoko.bsky.social
[ View ] Jun 24, 2024 at 17:39 UTC

The loss of being able to spend an afternoon puttering around the kitchen making five or eight dishes was one of the harder parts of my worse phases of LC. Would you like to hear about the kind of stool I found to be able to sit and cook?

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Sage @sagetoko.bsky.social
[ View ] Jun 24, 2024 at 17:32 UTC

Sometimes it’s salt instead of oil! It has a higher heat capacity but then the materials to contain molten 1000 degree salt are more expensive.

0 replies 0 reposts 16 likes